This is a little diddy that Knoah has been working on for all of you! I realized that many of you haven’t heard his voice yet. It is strong, deep and can be loud! Since he can’t say “Hello” yet, we changed it to “Achoo”, it works, so….
Here is Knoah singing the “Hello” [...]
We have several new blogs relating to dwarfism and I want to share them with you!!
Reenea, mom to Emma is a member of LPA and POLP. Emma has Achondroplasia. She is a cutie and we got to spend some time with them in October!! Reenea is active with her district and even runs the website [...]
| Honestly, can anymore drama fill my household?
This is us we’re talking about, what do you think?
Yep!
In his defense, Knoah, while absolutely entertaining, lovely and fun, he continues to be the least graceful creature on the face of the planet! He has officially surpassed Hannah by a nose!
Yesterday, while he was playing *shaking head* (wondering why [...]
The LPA National conference is quickly coming upon us!! I am super excited!
Jacob has wanted to go to New York since he was little and I am hoping we’ll be able to take him!
I have been researching transportation cost, trying to figure the best way to go…drive, fly or train? I do know at this [...]
| Jane, Jakey’s mom called me last night. Jakey is one sick little boy right now and I am asking you keep him and his family in your thoughts and prayers! As of last night, he was in the ER awaiting some tests and from what I could hear, he was not the happy, smiley boy [...]
| Is it just my screen or can you see it too? The area down by the “Link” column is leaching into my post section….I mean REALLY!
Okay, any suggestions? I can’t find the problem!!
Now, it’s fixed? *eyes rolling*
Johnny Depp?
What does he have to do with dwarfism? Well, I just received an email that there is an auction going on and 10% of the proceeds will go to CoDA.
The Coalition for Dwarf Advocacy (CoDA) was formed to advocate for individuals with short stature (dwarfs) in the areas of medicine, vocation, education, adoption, and [...]
Yes, a ROADBLOCK!!
I have spent 24 frustrating hours trying to figure out what is up with my computer…or more specifically, my disk drive.
I bought a new camera and needed to load the software for it. So, I pop the disk into the drive and nothing…
Okay, going back a few weeks, the drive stopped working. Suspiciously, [...]
Two posts in one night! I must really can’t sleep!
I nearly forgot to update about Knoah’s MRI.
He underwent an MRI December 16th, so the 6th, we went to get the results.
Dr. M agrees his head sized has increased faster than what is expected for children with Achondroplasia. He also does have the stenosis of [...]
I have never hide the fact that I absolutely LOVE my children. I do. I know, I know, bizarre ain’t it?
Seriously, my three children keep me grounded. They keep me from the edges of insanity dealing with the “real world” and they willingly push me to the edge more times times than I care [...]
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