Knoah’s (ARC) Achondroplasia Resource Center

At the age of 2, Knoah should:
Motor Skills
drink from a straw YES
feed himself with a spoon YES, very well!
help in washing hands YES
put arms in sleeves YES
with help build a tower of 3-4 blocks YES
toss or roll a large ball YES
open cabinets, drawers, boxes YES and makes BIG messes!
operate a mechanical toy YES
bend over to [...]

When I found out we were having another baby and it was going to be a boy, I wanted to come up with a creative name.
But, since I have this secret obsession that all my children’s names have to be Hebrew (I don’t know why, so don’t ask) I was limited as too what to [...]

In closing Dwarfism Awareness Week, I wanted to highlight the blogs who did a post.
I want to THANK EVERYONE who had chosen to blog about Dwarfism Awareness Week or blog in general! Each day you decide to share a piece of your life, helps someone who is not in your position understand a little bit [...]

When thinking about having a child with dwarfism, the one question I am always brought back to is:
How rare is it? Trying to understand and grasp the “rare” concept can be difficult.
I mean let’s look at the statistics.
Common genetic conditions that affect fetus’s are:
Down syndrome (1/600 live births and increases with advanced maternal age)
Pregnant and [...]

Yes, we had cake for Knoah’s birthday!!
A homemade cake! Not nicely decorated, but hey it was edible and didn’t last 24 hours so I will not complain!
I made Knoah his own personal cake. Being a newly created germ-a-fob, I felt it was in order since little lips (Knoah’s) like to spit (germs galore) all over [...]

It’s official!

Knoah’s 2!

Early this morning, at 1:16am actually, he turned two! We are going to McDonald’s to a small family get together. I bought the stuff to make his cake and picked up his birthday present. I hope that the months of practicing to blow out candle’s pays off and he’ll blow out his candle!
Today, [...]

Today is Bianca’s 2nd birthday!
Bianca passed away October 15, 2008.
I don’t know if Heather has been to the blog, but please, if you have her email address, write to her and let her know we are there for her. We are thinking about her and her family. This is going to be a very hard [...]

Yesterday, while running errands, I actually had a “positive” experience.

I had stopped out at CMH to give them the paper work for Knoah’s Family Support Subsidy and while there, there was a gentleman, maybe a few years older then I am with a female companion. They were entrance in the “Knoah Phenomenon“. Well in thier [...]

We had the kid’s photographed a few weeks ago. Well actually, let me begin this way…

Angela Halopulos is the owner of Radiant Image Photography. I had the chance to talk with Angela over the phone a few months ago after she inquired about photographing special needs children.
I can tell you, our experience was FANTASTIC!! Angela [...]

I was preparing to have a baby. A baby, we didn’t know if he was going to survive. A baby, that we were told would look different, a baby that would change our lives forever, a baby, who would become a wonderful addition to our family.
Sometimes, we all need a little extra help seeing the [...]