Knoah’s (ARC) Achondroplasia Resource Center

I am so excited!! Mandy and her family are going to swinging by here on Saturday for a visit!

This is actually a funny story….picture it….
Way back in 2002/2003 my husband was the coordinator for a fatherhood program for dad’s who wanted to become even better dad’s to their children. So, as the coordinator, he befriended [...]

There have been several new blogs created over the last few weeks!!
First is Emily. Emily contacted me during her pregnancy and I help direct her to all the info she would need for her little one’s diagnosis. Well, God is amazing and Bennett was born. After a few weeks, they determined that Bennett who was [...]

Ready?
Can you stand it?
Okay!
Take a deep breath!
Yes, I will have two extra settings at my table!
Click here!
Yes, Andy and Clare are coming to the states for a visit!!
They come in on the 3rd of August and the 9th, they will be here at our house!! I am so excited, I can hardly stand it!
Clare emailed [...]

I have been so slacking with keeping up with everyone and updating about Knoah’s doings!
There are SO MANY blogs now, that I try to hit them at least once a week! I think I am failing!! Don’t think I am not reading, it’s just with 20 blogs dealing with LP’s, I am amazed at our [...]

* This entry is for any visitor’s from Channel 13 WTVG website to bring them up to speed about who we are, why this blog is here and what we do.
Today, July 8, Zack Ottenstein reported about our families experience with Lead Abatement and what happens when it goes wrong.
So, let me give you [...]

There is going to be a news report about the Lead situation we are dealing with.
Channel 13 reporter Zack Ottenstein did some investigating and I think it will be an interesting story. If you want to see part of the clip, in the main box scroll through until you see Knoah’s beautiful face and that’s [...]

Dave, also known as Luna Pier Cook, saw something on the news today. Go over and check it out.

Happy Independence Day!! Although this should of been posted yesterday, we were away.
So in the spirit of FREEDOM, I will show you Knoah’s idea of Independence Day!!

Amy Roloff has been chosen to lead Central Michigan University Homecoming festivities this year! Homecoming takes place October 10-11, 2008 and she will lead Sunday’s parade and will participate in halftime ceremony at the football game.
“It’s overwhelming to be chosen as grand marshal. I would have never thought this would happen. It’s exciting,” Roloff [...]

Achondroplasia and Hypochondroplasia: Dwarfism
Is a genetic autosomal dominate (de novo mutation) genetic disorder of the long bones. Rhizomelic (proximal) shortening in the upper part of the arms and legs.
A newborn with Hypochondroplasia will be average length and weight.
Parent’s with a child with Hypochondroplasia are usually the result of a spontaneous gene mutation on the FGFR3 [...]