Knoah’s (ARC) Achondroplasia Resource Center

“Do you want to meet me?”
Have you been longing to get your hands on Knoah? Have you followed his progress from birth to today? Did you just find our blog and have questions about Achondroplasia or dwarfism in general? Here is your chance to ask questions in person!
The Monroe Evening News is having a “Meet [...]

HAPPY 78th BIRTHDAY MEME!!
Well life goes on we found. The first few days have been surreal and leave it to Knoah to “knock” us back into reality! Today, while riding his Radio Flyer, he decided to try to ram the back door to break loose from the strong hold of the house.
Then he busted his [...]

I want to say Thank You to everyone who has been calling, stopping by and offering their prayers.
I cannot express enough heartfelt appreciation for all of the kind remarks we have heard over the last 48 hours.
It is a difficult time for our family, but like all things, God is in charge and he has [...]

This is the article that is written up on the MEN’s website. It relates to my husband’s firing.

As much as I appreciate the thoughts and prayers for my family, there is another family who could use them more.
Sheba Marithe, born Novemebr 13, 2007, passed away July 23, 2008 from Severe Hypoxia. Sheba was born with Achondroplasia and her name means “Gift”.

Please keep Sheba’s family in your prayers!

Yes, there comes a time in everyone’s life when you need a little entertainment.
I thought I’d give you some of our fun!

I’ll explain “how’s” later!
Okay, it’s later…
Knoah is able to spin around like this because of his brace. With him being in bracing therapy and this new brace, it limited his mobility a lot [...]

Wow! 3 posts in one day!!
Last week, I was contacted by our local paper, the Monroe Evening News and they wanted to do a story about “What is Normal?”! I agreed and you can find the link here!
Enjoy and while your here, please add yourself to our guestbook!!

We took the kids to Cedar Point with my family on Sunday. I thought, how much fun will the kids have!

I can finally get Jacob to ride some of the large roller costers, Hannah can ride her Himalaya and Knoah can finally ride some of the kiddie rides!
Wrong! We took Knoah to one of the [...]

Mandy and her family were here today! We had lunch and sat around and talked. Something about “consistency” comes to mind.
Mandy is great! She has an awesome sense of humor. We shared birth stories, family stories and the kids ran around and played.
Andrea, I have to add is SO CUTE!! She even gave [...]

Well, I just spent three hours in he**!
At 9:00 pm tonight, I get a phone call from the doctor’s saying that Knoah’s blood work came back abnormal and he would call me back after he has more information.
Okay.
9:25 pm, the phone rings and he says that Knoah’s blood platelet count is really low. I ask, [...]