Knoah’s (ARC) Achondroplasia Resource Center

A question I hear a lot is “Is Achondroplasia or Dwarfism a disability?”
The easy answer to this is YES! Usually when a parent or guardian asks this, it is usually because they are interested in filing for Social Security Income (SSI) for their child.
Under Federal guidelines, Achondroplasia, is considered a disability and a person with [...]

Knoah’s appointment with the Opthamologist went VERY WELL!! The doctor didn’t see any indication of pressure behind Knoah’s eye’s!! So, it looks like we’re in the clear! YEAH!

Another mom of an LP reminded me about a song. Even when the medical community is stumped, parent’s can look past the “rareness” and see their child. A [...]

Just a observation here:
We applied for a handicap permit for Knoah when he just under 12 weeks old. At the time, I had an oxygen tank, apnea monitor, diaper bag, car seat and baby to un-load from the car every time we went somewhere.
Under State statue, Knoah is entitled to have an Handicap Placard for [...]

New growth charts have been created for achon children.
These are Weight to Age charts, please print off copies for your doctor’s.

Trisha, mom to Caden has ventured into the blogging world!!
Please go over and say “Hi!” to Trisha and Caden!!
Caden and his mommy!

We are back from Grand Rapids!
Knoah’s appointment went really well, but I guess it also could depend who you asked. If you ask Knoah, I am sure he’ll claim he was some how “tortured”. The amount of screaming he did from the time we walked into the examination room till about 10 minutes before we [...]

I DECLARE THIS SONG OUR THEME SONG! Me, Tonya, being a bucket of positivity, live this song…DAILY!
Thursday is Knoah’s appointment with the famous Dr. Pauli! I have been running around to do appointments, calling to make sure charts have been sent and taking care of other family responsibilities.
Preparing for doctor’s appointments, we all know is [...]

Do you remember a while ago when we went through the car seat fiasco?
Well, little did I know that someone would actually be interested in something I wrote. Let me explain.
When I wrote that post, I was venting. I was angry that someone would sell an expired car seat. I was willing to look past [...]

Yesterday was FANTASTIC!!!
We ate, talked, laughed, compared notes about our little ones, talked about the siblings, it was a great time!
First to arrive was Catie and her family! This is Catie with Hannah. Hannah is 3 years old and is a doll! She found a quick friend in my Hannah (more on that later!) Catie [...]

Knoah’s Ortho appointment went REALLY WELL! Dr. Yassir is GREAT! While I feel sorry for the families who lost him on the East Coast, I am THRILLED we have him now!
They took an x-ray of Knoah’s kyphosis and while being braced it still is coming in at 40-ish degrees, bracing should help. Dr. Yassir said [...]