Knoah’s (ARC) Achondroplasia Resource Center

*Note: I am not a doctor and any questions regarding these or any other tests should be directed to your doctor!!*
Being a new mom of a child with dwarfism, in particular, a child with Achondroplasia. One of the questions that gets quickly asked is “What tests should we have done?”
Right from the start, these are [...]

My baby Owen has RSV!!!
I am FEELING SO GUILTY!!! Did Knoah get him sick???
Please keep Owen in your prays!!!

One of the major discussions that usually happen within a family when a child is diagnosed with dwarfism is “How will they use the bathroom?”

An average bathroom, with a twist!
Of coarse, there are ways for children with dwarfism to use the bathroom at home with comfort. One way is to place a step stool in [...]

I now know his Tonsil and Adenoid removal was successful!!
Not only is he quieter than before, but I can NOT hear him, I wake up out of a dead sleep to the thought “OMG, the baby is dead!”
Silence. Nothing. Lean in closer to hear the faintest “bruuuu”.
So, I am convinced that while the surgery was [...]

I have created a message board for What is normal?
My hope is that the parent’s who find this site can ask questions of the older parent’s or we can all just mingle!
Chat away!!

This picture* was taken during the Influenza Epidemic of 2008. LOL
*Any and all offensive material has been erased from photo.*
Our appointment with the Orthopaedist went well the 20th!
The doctor said that Knoah needs aggressive bracing. His Kyphotic curve is in the 40’s…(I thought the other Ortho said it was 74?)
That is why we went to [...]

Today is the day!!
YEAH!!!! YEAH!!!!

We see Dr. Yassir today at the Detroit Children’s Hospital. I’ll be sure to post the latest! Dr. Yassir came out from the New England Medical Center and is regarded as knowing how to treat people with Achondroplasia. Knoah’s Kyphosis is worse than most, I agree, but I am confident that [...]

We had a GREAT TIME at Owen’s 1st Birthday!!
He eat his cupcake, received loads of gifts and got to see his buddy Knoah!
Knoah enjoyed sharing in the party!

The boys played together and discussed an upcoming gathering of LP’s and their moms! LOL

Cat and Dan’s families are really nice! I am so honored we got to [...]

Knoah, Hannah and I are going on a road trip tomorrow afternoon!!
Huh? Where are we going you ask?
To see Owen and too celebrate his 1st Birthday!!

What fun it will be!!
I’ll be sure to take loads of pictures…I just have to remember to bring the SD card for the camera! “Get it now!” the voice says!!!
On [...]

I realize there is a HUGE interest in a type of dwarfism called Primordial Dwarfism or commonly known as PD.
For those of you looking for more information, I have complied links to websites and personal blogs that deal with PD.
Kenadie Jourdin-Bromley is a little girl who has PD. Please click the highlight to go to [...]