Knoah’s (ARC) Achondroplasia Resource Center

Cole Johnson, Achondroplasia, is now 5 1/2 months old! He is getting to have such a personality! Cole is doing a great job holding is head up while on his tummy. He is still working on rolling over. Not quite there yet, but he is trying! On February 1, Cole is scheduled for another MRI. [...]

Fern and her mother Sharon live in the UK. Fern was diagnoised with Achondroplasia, this is her story!
I had a normal pregnancy, with no complications. We had a nuchal fold scan at 13/40 that gave us a low risk for a baby with Downs Syndrome followed by a scan at 21/40. Everything was normal and [...]

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Early in my pregnancy, I had never really given any thought to how Knoah was going to come out. Jacob and Hannah had both been vaginal births.
Jacob was induced on my due date. My labor I would say was fairly typical. I elected to have an epidural. I [...]

After Meme passed away, for a couple of months at least once a week, both children, Jacob and Hannah would bust out into tears. I would explain to them that it is normal to feel the way they are and if they wanted to cry they could. This lead Jacob to cry his eyes out. [...]

I am hoping to do an update of all our little ones!! If you want to be included in the update, please send me a short update on how your baby is doing, type of dwarfism, milestones accomplished and doctor’s recommedations along with a photo and I will do the update soon!
Please have everything to [...]

I took Knoah to see the neurosurgeon on Friday. He said that he can “officially say Knoah has Hydrocephalus“. He wants to see us back in three months, provide he stays symptom free.
We have to watch for loss of motor skills, vomiting, nausea, headache, irritability, sleeplessness, etc. If Knoah starts to show these symptoms, we [...]

Adam Romano was featured in a article in the Monroe Evening News on 12/29/2008. He has Achondroplasia and is an all around athlete
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“It’s just something I have to deal with. If people want to laugh at me, let them laugh. If they are laughing at me, they are laughing at God because He made me [...]

Luna Pier Cook AKA Dave is ALWAYS cookin up some good stuff! His post talks about “Fake food Vs. Real Food”…I wonder what he say about this? It’s a special dish I’d like named “Knoah ALA Lobster”

“Oh, Oh…It’s hot!!”

“Oh, It’s still hot!”

“Oh, that’s better”

“The warmth on my butt…that’s more like it!”

“Yeah baby…I’m smokin HOT!”
Thanks [...]

“First, I must note: I am NOT a doctor. The information is just that, INFORMATION and should not be taken as medical advice. If you have any questions, please contact your primary physician.”
That is usually the first question a parent asks when the are told the baby has a skeletal dysplasia.
How do they know?
There are [...]