Knoah’s (ARC) Achondroplasia Resource Center

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This is a common question. What is Kyphosis? In medical terms it is this:
Thoraco-Lumbar kyphosis in achondroplasia. Most babies with achondroplasia develop a ‘hump’ in their lower back (sometimes referred to as a gibbus). For most of these that early kyphosis will go away by itself without any [...]

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Hallelujah! He’s drinking!
I have been pumping him full of the pain medication. After 30 minutes, he’s good to drink! I have been alternating between his formula (Prosobee) and Pediasure. The pediasure has 250 calories per serving, so I figure if he drinks a majority of it, he’ll of [...]

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It has been a long day!
Knoah decided he was going to stop drinking last night. I called the peds today to find out how long he should go without drinking. He advised me that it is common for children to not want to drink because of the pain. [...]

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As I mentioned early, Knoah’s surgrey was flawless! The ENT said that his Tonsils and Adenoids came out without a problem. He did shorten Knoah’s Uvula* and didn’t have to touch his palate!
Definition of Uvula
Uvula: The small piece of soft tissue that can be seen dangling down from [...]

We are back home now. I am exhausted, Knoah is in pain. I will update later tonight, but all in all, the surgrey went very well!!
Thank you for the prayers and love! I know they have help him get through this!!

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Monday morning Knoah will under go a Tonsillectomy and Adenoidectomy (T&A). In children with Achondroplasia, the Tonsils and Adenoids pose a breathing obstruction during sleep, AKA Obstructive Sleep Apnea or OSA.
Knoah’s last sleep study revealed he was still having a significant amount of OSA. This causes concern [...]

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Yesterday, while doing my usually running around, I decided to stop into Sensational Beginnings to use a gift certificate Knoah recieved for his birthday.
I had been browsing their website for the last few weeks trying to decide what to get him. I knew he really didn’t need any [...]

Knoah’s nickname…Snot. Doesn’t require an explanation.
Two years ago the thought of baby-proofing my home was a thought of the past.
“NO MORE CABINET LOCKS!”
“NO MORE BABY GATES!”
“NO MORE FEAR OF CHILDREN CLIMBING UP THE STAIRS AND FALLING DOWN REQUIRING UNSCHEDUALED TRIPS TO THE ER!!”
…well, ‘cept for maybe Hannah, we know how graceful she is…
My valiant cries [...]

Knoah at 3 weeks old.

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So, I ended my last post with “jealous yet?”
There was a hidden meaning…it appears that most of us moms with little ones (below average, shorter than standard, not on the charts children) have been going through a “phase”. I’ll call it a “phase” because [...]

This is what he is doing today.

Jealous yet?

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