Knoah’s (ARC) Achondroplasia Resource Center

Program done by 20/20 about dwarfism and gigantism

National Geographic Channel
This is a must see!!

Okay, so I really didn’t, but I’d bid if I had

Jacob was walking around singing this song to him!
We leave tomarrow afternoon for Grand Rapids. It is time to see Dr. Pauli again! I am so excited!! I can’t wait for 1. For him to see Knoah and 2. to see how Knoah [...]

Knoah has his TLSO brace! He HATES it!

He is suppose to wear it 22-23 hours a day. The first couple of days I am going to have him wear it alternating. So a few hour on a few off. As the days go by I’ll have him in it all day.
Before he feel asleep, [...]

I just realized, several days ago, it has been extremely quiet in my house. I don’t mean with the kids, kids are never quiet, but with Knoah.
Medically, he hasn’t had any issues. No ear infections, no blue episodes, no colds, nothing. It is very strange. It is like everything just stopped. Nothing in the last [...]

The Medical supplier didn’t call today. I am not surprised. Maybe they’ll call on Friday. *Eyes rolling*
Here is an interesting abstract about bracing in children with Achondroplasia.
This article also explains bracing effectivness in children.
I am suppose to be getting ready for a yard sale….huh, look what I am doing!

When “it rains, it pours” is the saying.
We were approved for an air conditioner for Knoah!! MCOP has an emergency fund and we had applied and were approved!! YEAH!! I picked it up Friday! I put it in and it works great! Knoah is a cool LP now!
THANK YOU MCOP!!
Then I received a phone call [...]

These are cool!! Knoah saw them travelling down First Street tonight!

A huge, humble THANK YOU to Ann Freund!
Ann contacted me some weeks ago and asked if she could have my permission to do her term paper about Knoah and a parents perspective about raising a child with Achondroplasia. I told her yes, and writing she went!
Now, I am honored to tell you, Ann received an [...]

Paula posted a response to the articles referenced in If you could and she brought up some very good points.
Even if you could choose your child, genetic condition or lack there of, would you? Would it change life circumstances?
The articles mention creating a disease free child. Creating children to ensure certain defects or disorders [...]