Knoah had his Orthopedist appointment today. We drove to Ann Arbor alone. It was a nice, quiet (yeah right) ride. Knoah sat in back just yelling and screaming. He wasn’t upset, he was talking to me.
We get there and I am told to go down to have X-Rays taken of his spine.
It was horrible! You [...]
I have to make this a ranting post since I haven’t had one in a while. It will probably be rather long. Apologies!
Mostly everyone at this point has heard about the Chris Benoit tragedy.
In one of the news reports I read said that their son, Daniel was given growth hormones because he had dwarfism.
Obviously this [...]
Will and I have talked about what having a child with a disability means to our family and life in general. Then I asked him this “How do you feel knowing you have a son who isn’t considered “The All American Boy”.
This entry is written from a Dad’s perspective:
Writing this is odd for me. [...]
We have made it a few days without the monitor. I am getting use to not having it. Okay, not really, but I am realizing that it’s gone.
GONE! Meaning I have to rely on nothing to alert me to problems. GONE! Meaning I have to watch him that much more closely.
GONE!
He’s fine with it. He [...]
Well, Knoah’s surgery is canceled.
Remember I mentioned the article in my last post about Anesthetic and Pathophysiology in Dwarfs?
Well, my intention was to give the anesthesiologist the information so they are better prepared to handle Knoah. In a shorten version of the 17 page article. Yes, I read all of it. Three times.
It describes the [...]
Phew! I am glad that is over with!
He did very well. He might have slept better if I wasn’t bothering him throughout the night. I poked at him, touched him. Anything to make him move. I put his pacifier in his mouth. My thinking is there is research that suggests pacifiers reduces the risk of [...]
Doctor V: “Do you drink Margarita’s?”
Me: “Why, should I start?”
Doctor V: “Have yourself three tonight, we’re getting rid of the monitor.”
Me: silence
See Knoah’s face in this picture. This is how I am feeling.
We saw the Pulmonologist today and Knoah is…monitor free!.! No warning. No, brace yourself. Nope. Dr. V layed it on, thick, heavy and [...]
I am amazed at the lack of sensitivity of some people.
I belong to a internet group for parents of LP children and we have been notified that our children’s photographs and images are being stolen and used on various websites. Obviously, these websites are promoting “Midget Bashing” and “Dwarf Tossing”. They are profiting from stolen [...]
The Places Knoah has been!
He has seen Turkeys running wild on the Plains!
He has seen fish swimming in the Pacific Ocean!
He has taken on and beat animals 1000 times his size. See, he’s try to eat it and it’s still stuffed!
All of this without leaving the county! I am impressed!!
He has been to 13 States [...]
It seems it is in the process of ending, but never gets completed.
We saw the ENT today and he confirmed the diagnosis. Knoah has Serous Otitis Media.
This is Dr. Ryan Meredith. He is a Clinical Audiologist. He works in the office with Dr. George Levy. Dr. Meredith is preforming a Tympanogram. It measures the pressure [...]
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