Archive for May, 2007

The prays are working! Bryan is off the ventilator and making good progress. His grandmother said he is doing well. I am SO relieved!!!
Added:5/17/07 by Candi (Bryan’s Grandmother)
Thank you to everyone for their prayers.  Things are much better, and
hopefully Bryan will be home by week’s end.  This whole incident took 10
years off my life, hopefully [...]

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We took the kids for a bike ride yesterday. It was not a good day. I wondered as I peddled.
How do you show your are positive and doing the best you can, when you have people saying nothing but negative?
When you do find your surrounded around negativity, when do you “let it go”? When do you [...]

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I just recieved an email from a friend I met through this blog. Her name is Candi and if you look back at How much he has grown she posted a comment about her grandson Bryan. Bryan is about 7 weeks old and also is Achondroplastic.
Just a little history, Candi and I have been emailing each [...]

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I just want to wish all the mom’s a Happy Mother’s Day!!
Okay, maybe I want to add more than that, because everyone knows that when I have something to say, I will. LOL.
With today being Mother’s Day, everyone I know has dinner reservations, family house hopping and plans to give their mom’s spectacular gifts.
My Mother’s [...]

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Be Not Afraid is a website dedicated to helping parents given a possible poor prenatal diagnoses.
When the doctor’s first told Will and I that “the baby is not growing normally” I searched for hours for an explanation. I came across this website. Be Not Afraid has tons of stories relating to different genetic conditions. Some of the stories [...]

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Okay, I have never proclaimed myself “Martha Steward” nor have I ever implied housework is high on my list of priorities. I try to keep things picked up as they wonder down from the kids room’s or attic. Somehow, the dungeon seems to want to send my things that I haven’t seen in years.
I have [...]

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The Miracle of Life
 
In my 38th week of pregnancy, my doctor ordered an ultrasound.  I had grown 3 centimeters between my 36th and 37th week and he wanted to err on the side of caution.  I wasn’t too concerned and in fact was excited to see the baby again!  On Feb 8th 2007 we arrived [...]

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I am finding this blog has provided some families with children affected with dwarfism a peek into what to expected, what not to expect and a glimmer of what life holds.
I was contacted by a women, her name is Catherine and her son Owen is three months old. He was born with Achondroplasia. She said [...]

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CRISTIANNE RAY- The World’s Smallest Women gave birth to a Baby Girl! They named her Krysten Elise Ray. She is 14-inches long and weighed 4 pounds and 8 ounces. Doctor’s believe she will also be an LP, just like her mom. Cristianne gave birth via C-section and mom and baby are doing just fine!!
They will [...]

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 The neurologist doesn’t think thier seizures, but he didn’t review the EEG completely. He mention possible spinal stenosis. (He’s been reading about Achon, very good!)
So we’ll have yet another MRI to look at his neck and spine.
Breathing a sign of…something. For now, he’s still Baby Smurf.
Spinal Stenosis is different from Foramen Magnum compression. It is [...]

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