Archive for February, 2007

This post is in response to the last comment. I appreciate reader’s comments with concern to the blog. It gives me an oppurtunity to clarify or discuss issues that people may have questions or responses. It also provides me with a learning oppurtunity, which I am always game for!! The reason I use the terms [...]

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I have been talking a great deal to parents of LP about some of the kids having seizures. It sounds like Knoah is have two types. This was taken from http://epilepsy.com
If anyone has experience with seizures, please email me at jannob980006@yahoo.com
1. Absence Seizures
Here’s a typical story: Frank, a 7-year-old boy, often “blanks out” anywhere from [...]

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Oh, my! I am in love with Dr. Pauli!! He is a true dwarfism expert! He is very kind, soft spoken and gives you the information without hiding the truth. He said that “Knoah is just beautiful”!
List of items we were concerned with:
Foramen Magnum: Beautiful, no surgrey needed
Kyphosis: Worse than he expected but reversible to [...]

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Here they are!! A.H. and Knoah!!

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While in Grand Rapids, Will and I stayed at a place called the Renucci Hospitality House http://spectrum-health.org/renucci 
This place was wonderful. They have three full stocked refridgerators, playroom, movies you could take to your room. It was a home away from home! I would highly recommend if you want to donate money, give to this place. [...]

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  I am asked “Why do I blog?” Well to start, in a way it is sort of a diary. The only difference is, anyone can read it. Would I write something I wouldn’t want people to read about? No. If I don’t write it, it’s not meant to be read or know. That said, [...]

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  My dad always says to me “what goes around, comes around”! I have always believed this. I try to live my life as God whats me to and I try to never feel sorry for myself. I don’t ask why me or wish someone else to go through what  do. I remain open minded [...]

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One night a man had a dream. He dreamed he was
walking along the beach with the Lord. Across the
sky flashed scenes from his life. For each scene, he
noticed two sets of footprints in the sand: one
belonging to him, and the other to the Lord. When
the last scene of his life flashed before him, he
looked back [...]

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