Well, the two babies met. It was so much fun! A.H. and Knoah had a blast, or I should say, their parents had a good time! We had dinner, talked, stripped the boys down to thier diapers to compare limbs. LOL. A.H. is longer than Knoah but Knoah weighs two pounds more. A.H. has this [...]
| I am excited!! I have to share. On Saturday, I am meeting another mom who son also had Achondroplasia! She and her family are coming up here to visit and have dinner. Her son is 14 weeks old and we meet through the POLP group. She lives in Ohio, not to far from us and [...]
| It is amazing how quickly and without warning life can change. I never really gave people with disabilities any additional thought other than what the may go through in life and if they needed help while out in public. I was brought up to hold the door open or help a person reach something on [...]
| Some people born toxic or do their personalities allow them to be?
Some people think being mean and nasty endure them to others like themselves?
Some people change their perspectives without really knowing someone?
People unfortunately make assumptions and judgements on others without justification or truth. You challenge their authority or question their motives and they damn you. [...]
I know it seems hard to understand or you may think I am nuts, but I really do think I am one of the lucky ones. As far as how much we have been blessed. I have a great family. My mother, father, grandmother (affectionately known as Meme), aunts and uncles and yes sister and brother.
Most [...]
Tick, Tick, Tick, Tick…Tick, Tick………..Tick
This is what I fall alseep listening too. Most people are comforted by sounds of waterfalls, rain, wind. I fall asleep to Knoah’s apnea monitor. It is the sound of his life, his movement while sleeping I am comforted by. Tick, Tick, Tick all night long. His apnea monitor is set [...]
Here he is! A face anyone could love! Knoah is doing well. Lucky for me and him, we haven’t had any alarms since we came home. I am still nervous being home alone with him and it is quite a trip to actually go out into public. I have his oxygen, his monitor, him and [...]
This is a post I made to POLP2, although I use the word dwarfism, change it to disability and it is a starting primer for those parents just entering the world of their child’s disability, whatever that maybe!
Just starting down this road, I have ben forced to look at things
through from a different perspective. My [...]
We are home now. I don’t know how I feel about that yet. Knoah is on 24 hour oxygen, a apnea monitor, Zantac for possible reflux and Caffine for the central apnea. Yes, in the morning when I get my cup of coffee, Knoah gets his does of caffine. It helps stimulate his central nervous [...]
| Apparent Life-Threatening Event (ALTE)–An episode that is frightening to the observer and that is characterized by some combination of apnea (central or occasionally obstructive), color change (usually cyanotic or pallid but occasionally erythematous or plethoric), marked change in muscle tone (usually marked limpness), choking, or gagging. In some cases, the observer fears that the infant [...]
| 
Loading ...
