So what does a dwarf baby look like?
Well, he’s finally here!! After the excitement and drama from the birth, I have a chance to see what my child looks like. I am partial, but I think he is beautiful. I can see his short limbs. His arms reach his waist and no further. Most newborns arms reach to their hips, Knoah’s does not. Knoah’s legs are short, mainly his thigh or femur. His head is large as well as his torso being long.
With the TLC show Little People, Big World most people I have encountered are becoming increasingly more aware of dwarfism and it’s not just something you see at a sideshow. I think that being a parent of a little person opens up new experiences and you see things you didn’t before. I have heard people say things like, “Oh, I have seen that show and they are so small and cute.” Or “It’s amazing they are normal.”….hence the name of this blog!
I have found dressing Knoah is presenting some challenges. It is difficult to find things to fit right. I have to roll up his sleeves and his legs just flop around in anything bigger than NB (newborn) sleepers. Yes, he is short and cute. His little arms and legs are precious. I adore his little feet, but with dwarfism comes a whole host of medical complications.
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This post has 5 comments
December 30th, 2008
Congratulations on Knoah. Our daughter had a baby in January 2008 who was born with Achondroplasia. I know what you mean about dressing being a challenge. Davyn wears a 6-9mo top and 0-3mo pants. Shoes are another issue. Our daughter is on top of his medical treatment since she is in the Army. They are visiting us in Texas now so we took him to a Pediatric Orthopaedic Surgeon today who was recommended by his Pediatrician here in Texas. They were surprised that a Skeletal Survey has not been done as of yet.
Best of luck with Knoah.
Molly
September 30th, 2009
Hi…. Ur baby boy is precious! My husband and I are having a little girl any day now and doctors and specialists have told us to be prepared for our little Jemma to have achondroplasia. Our doctors haven’t been very helpful with her diagnosis. We have actually done an enormous amount of research on our own from the complications at birth to different limitations that we will have as she grows. I’m not sure what kind of advice or information u can share with me but it makes me feel more comfortable to be able to reach out to someone else that has been blessed with a special baby like mine. I’m not sure what her delivery will be like or what to expect and our doctor wasn’t even aware that they suggest a c-section for achon babies. That made us uncomfortable not to mention the fact that he’s never delivered a baby with any kind of dwarfism . He seemed as though he thought we were over-reacting when we were disappointed because we asked him questions at our appointments and he had no answers to give us. Well, I guess I just don’t know what to expect. He wanted to induce us at 37 weeks because he was going on vacation despite our concerns with her complications. He seemed irritated because we told him we wanted to give her every chance to grow and develop and let her come on her own. He is known for not letting any patient go over 38 weeks because he said it’s not good on the baby but why else would a pregnancy last 40 weeks. Babies come when they are ready not just when the doctor feels it is convenient to them… Right?
November 16th, 2009
hiya look my we sister has jst had a baby boy we havent been told yet if he is Dwarfism he also has brittle bones which didnt run in r family i wud jsut love da b able to talk wif people dat shre the same fings as us my sister finks he isnt but i fink he is an his a double of ur we man well our we man is called kenzie
November 16th, 2009
he has oi type 3 an hes a we stunner if any 1 wud like to chat to me wud yas add me on msn its bronagh3@live.co.uk wud love da hear the storys but r we kenzies 2 mths nie an no 1 has even said anyfing about it yet wich i fink its a bit unfair she needs to no but i hate saying it to her but we will love him mre than ever even if he is plz add me
November 28th, 2009
Congratulations on your lil guy , he is Precious. I had my baby July 29. this year,they are truely blessings.
Did you have your diagnosis right away? My friends son Dakota will be a year old in Jan.2010, he is tiny, he hasn’t been diagnosed yet, he eats all day and dosn’t get any bigger. I told her I would check to see if I could find a specialist online, can you suggest anyone? Social Services,sent him to the hospital for two weeks( With a possible failure to thrive case.) Did’t gain an ounce! He is placed with his auntie for one month and still no results on his blood work.I have a pick you can see how little he is.
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