My life, that is. As a teenager, I would daydream about my life. We all did. Who I would marry, what my kids would look like, how I would dress them, how I would raise them. You can say my vision included my son a being a little sk8ter boy and my daughter rocking rebellion [...]
| Knoah has his doctor’s appointment in Feb!! YEAH!! I spoke with the Dr’s assistant yesterday and she is sending me all the paperwork and info we need for the appointment. I am so excited. He is one of the leading doctor’s in the world of dwarfism. I cannot wait to meet him and to have [...]
| I am getting concerned over Knoah’s medical issues. While he hasn’t had any severe complications from the Achondroplasia at this point, doesn’t mean we won’t face them in the near future. I am hopefully going to find out soon enough about an appointment in Grand Rapids in Feb. It’s not too much longer, but consider [...]
| When my husband I bought our home almost three years ago, the kids were at the age where they would start to remember holiday events, or at least certain aspects of a day. Well, as we were finishing the last touches of Christmas morning before the kids get up. Yes, my children have to be [...]
| “What do you want for Christmas?”
“Nothing”
“You have to want something, what would you like?”
“Nothing”
“Are you serious, I am getting you something?”
“Don’t, I already have my gift.”
I am so grateful to have my children. I love all three of them. I love them more now, than I did before Knoah was born. Horrible to say, I [...]
| My middle child Hannah is an extremely bright child. More in the sense of she get’s life. When we were trying to explain to the children what was going on with Knoah and how he was going to look, I showed them alot of pictures of little people. Jacob, the oldest, had a hard time [...]
| You know those days when things just sort of pile on for what appears to be no rhyme or reason? I have had one of those weeks. It’s not enough that we have to worry about Knoah on a daily bases, but we have everyday life to think about. Kids and school issues, job issues, [...]
| What do you think so far? Are there questions you have? Do you want a more in depth explanation of something you have read? Please share your thoughts.
Tonya Sweat
To this point in Knoah’s short life…no pun intended. We have had to prepare for a number of medical issues that could come up. Fortunately all of them can be ruled out through testing.
No sooner was Knoah born; they had to use the rescue breather because he wasn’t breathing. Then they whisked him off [...]
Well, he’s finally here!! After the excitement and drama from the birth, I have a chance to see what my child looks like. I am partial, but I think he is beautiful. I can see his short limbs. His arms reach his waist and no further. Most newborns arms reach to their hips, Knoah’s does [...]
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