Knoah’s (ARC) Achondroplasia Resource Center

Yes, Knoah is in Kindergarten…

No, I can’t believe it. It was just yesterday that he was born…just yesterday that we were in the hospital, just yesterday I thought I was going to lose him. Now today he’s in Kindergarten!

The first day was NOT what I had envisioned. He had a HARD time By Hard time, I mean, he started noticing the other kids staring at him. Then the questions started. “Are you a BABY?” asks one little girl.

“NO I AM NOT!” yells Knoah

He then packs his stuff in his bin, grabs it and turns to look at me and says “I want to go home!”

My heart breaks into pieces!

He REFUSED to have his picture taken.

Those were the LONGEST 2 hours I have ever spent…within the last two years. LOL

As of today, he still complains about going to school, but knows he has to go. I hated that he has to experience this, but at the same time, I do not want to recuse him either. I did end up sending letters to school for the parents and staff explaining what Achondroplasia is and how it affects Knoah. I haven’t heard any feed back as of yet. I did also talk to the class about Knoah, saying we don’t call him a baby and that he is the same age as they are just short. They seemed receptive, so we will see how the year progresses.

Jacob started 7th grade and Hannah started 5th…AGH, they have gotten older too quickly!

So long a road, with twists and turns, there is never a dull moment.
Sorry for the super duper long vacation, I needed to re-group, clear my head and take care of business.
Knoah…oh, Knoah…he is 4 and a half…5 in his mind, and he will argue the point with you. He has grown in personality so [...]

Yep, he is. Knoah is 4 years old today! I can hardly believe it! I mean, he’s just grown up out of nowhere….
Everytime I turn around, he’s changing more and more. Everytime I turn around, something else is changing.
Life. A never-ending cycle of changes, expected and unexpected. To re-cap, August…something marked the month my divorce [...]

http://www.mirror.co.uk/news/top-stories/2010/07/18/dwarf-mum-s-joy-at-being-first-in-the-uk-to-give-birth-to-twins-who-are-both-dwarfs-too-115875-22419973/

No, we didn’t fall off the face of the planet, even though I think it may have been emotionally easier…just kidding!
So much has happened over the last year and without bombarding you or myself to re-tell it all at once I will gradually share bits and pieces of our life as we have now come [...]

Published in the Today Newspaper Sept. 4th, 1993

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over [...]

For the benefit of new readers to Knoah’s ARC or formally “What is Normal” I wish to take this opportunity to express some thoughts I have regarding the “M” word and others.
While in NYC, I had several opportunities to participate in discussions that affect LPA and the dwarfism community.
I did not set out to become [...]

One of the issues of having a child with a disability is making sure to have insurance to cover the massive medical tests and bills that come with such a child.
During Knoah’s first hospital confinement, in the flurry of paperwork, I filled out paperwork to get Knoah Medicaid. I don’t remember doing it, but he [...]

I was selected by Melissa Swartley who writes 3 Pretty Girls. THANK YOU!!!
My job today is to write 7 things most people don’t know about me. Well, most people know a lot about me because I usually share everything anyways, but I will try.
1. I currently have 8 tattoos and 2 piercings. I tend to [...]

Last Thursday, I made the yearly pilgrimage up to Grand Rapids for Knoah’s annual visit with Dr. Pauli.

The verdict: It went fairly well….not as many issues as previous times, however recurrent issues are still present and new ones popped up.
So, Knoah’s Good Report!
1. His legs are still straight! YEAH!!! Typically some children with [...]